Keeping Up with Joy

Joy is hula-hooping now, and she is very good at it.

At first, she didn’t quite get the hang of it. The hoop would go around her waist maybe one or two times, then drop to the ground. But she simply would not give up. She watched her sister doing it and decided, in the determined way Joy does, I want to do what Sister can do. And so she kept trying.

Now she’s got it. Those little hips really go.

Watching her learn has been a reminder of how much can be accomplished when someone refuses to be discouraged. Joy did not stop to wonder whether she had natural talent. She did not whine about how hard it was. She just kept at it until the thing that looked impossible (to me) started to look easy.

So I’m inspired. I may have to get an adult-size hoop and see whether I can keep up.

In the meantime, I’ve taken up running. I started in October, and my times are getting better. I recently ran a 5K in 34.5 minutes, which felt like a real achievement for me. Part of the reason I’ve stuck with running is that it’s fun. Part of it is that it’s great exercise. And part of it is pure necessity.

Joy likes to take off from the front yard and sprint down the street with no concern whatsoever for cars, dogs, or my increasingly urgent insistence that she stop. She just laughs and keeps running. So someone in this family needs to be able to run an eleven-minute mile.

At the moment, that someone is me. And more than once I have had to catch her and carry her home.

Between Joy hula-hooping and Joy bolting down the street, she has become both my inspiration and my conditioning program. She is a reminder that hard work and determination can pay off.

A seven-year-old can become an expert hula-hooper. And a sixty-four-year-old can train to run faster than a seven-year-old.

Joy sees something she wants to do, and she does it.

I see Joy in the distance, and I run to catch her.

It’s beautiful, really. One of us is running straight toward joy. The other is running straight toward Joy before she reaches the corner. For now, that seems to amount to the same thing.

Home. Sick.

Joy has been sick for over a week—home from school, bundled in blankets, moving slowly through her days. I thought I was immune. I had the flu shot. The COVID shot. Daily vitamin C. I figured I was covered.

For eight days, I’ve wiped her nose, cleaned up her vomit, spiked her orange juice with liquid acetaminophen, and let her kiss me anyway. And I felt fine.

Today, I’m not so fine.

But that’s life with a first-grader.

Even when she was clearly feeling awful, she still wanted to do alphabet puzzles the moment she woke up. We do them every morning. It’s our routine. If I make a mistake—like putting the letter V in the A slot—Joy simply picks it up, places it where it belongs, and moves on. She never scolds me. She never comments. She understands that mistakes happen.

I love that about her.

After puzzles, we play with the volleyball. Then it’s Cheerios and orange juice, though her appetite hasn’t been quite the same.

When we lie down for nap, she tickles my toes for five whole minutes. She does most of the giggling.

Tomorrow, she’ll likely go back to school. I’ll probably crawl back into bed at 8:22, right after she gets on the bus, grateful for the extra sleep.

But I’ll carry the week with me.

The puzzles and the volleyball. The Cheerios and orange juice. The way she fixes my mistakes without a word, as if kindness is the most natural thing in the world. The sound of her laughter when she tickles my toes, joyful and unrestrained.

These days don’t last forever. Neither does the sickness.

What remains is the knowing—that even in the small, uncomfortable stretches of life, there is so much love. Enough to fill a week at home. Enough to carry us both forward.

A Letter from a Mom

A while back I received a letter from a reader.

Hello,

This is a strange thing to write in this comment box, but I have a daughter with Down syndrome, and she’s named after your daughter Joy, even though I’ve never met her or you. Let me explain.

My other daughter was in Joy’s class at Meadows when I was pregnant and we got the news that she would be born with Down syndrome.

It was an emotional time for me, and one day I noticed Joy (I didn’t know her name yet) in the pickup line and overheard the teacher say to your wife what a great day she’d had that day and has every day.

I was overcome with emotion hearing that; it was so overwhelming for me. And then later there was a picture of Joy and my daughter on the class app. I asked my daughter about her, and she told me her name was Joy, and I immediately started crying. I was not yet at the point where I felt joy, and I found it incredible that you guys named her Joy.

I resolved at that moment that my daughter’s middle name would be Joy and that I would manifest a feeling of Joy in my heart for my soon-to-be baby even though that’s not what I was feeling at that moment. I was so scared of the unknown.

Fast-forward to today, and our little L___ Joy (now 20 months) is the joy of everyone she meets and the little joy of our family!! It’s hard to think back to those early days after the diagnosis. I think about my fear and sadness with shame. But seeing your daughter Joy, without even meeting her, brought Joy to my heart and helped me through that time.

I ran into my daughter’s preschool teacher recently and through our conversation I ended up telling her the story and she shared your blog. I just spent the last hour reading it. It’s so lovely. I’m so moved by what I read that I thought I’d take a leap and send you this note. I loved reading the stories of Joy and I can’t wait for my little L___ Joy to experience all of the things I’m reading about.