Tag: family

Home. Sick.

Joy has been sick for over a week—home from school, bundled in blankets, moving slowly through her days. I thought I was immune. I had the flu shot. The COVID shot. Daily vitamin C. I figured I was covered.

For eight days, I’ve wiped her nose, cleaned up her vomit, spiked her orange juice with liquid acetaminophen, and let her kiss me anyway. And I felt fine.

Today, I’m not so fine.

But that’s life with a first-grader.

Even when she was clearly feeling awful, she still wanted to do alphabet puzzles the moment she woke up. We do them every morning. It’s our routine. If I make a mistake—like putting the letter V in the A slot—Joy simply picks it up, places it where it belongs, and moves on. She never scolds me. She never comments. She understands that mistakes happen.

I love that about her.

After puzzles, we play with the volleyball. Then it’s Cheerios and orange juice, though her appetite hasn’t been quite the same.

When we lie down for nap, she tickles my toes for five whole minutes. She does most of the giggling.

Tomorrow, she’ll likely go back to school. I’ll probably crawl back into bed at 8:22, right after she gets on the bus, grateful for the extra sleep.

But I’ll carry the week with me.

The puzzles and the volleyball. The Cheerios and orange juice. The way she fixes my mistakes without a word, as if kindness is the most natural thing in the world. The sound of her laughter when she tickles my toes, joyful and unrestrained.

These days don’t last forever. Neither does the sickness.

What remains is the knowing—that even in the small, uncomfortable stretches of life, there is so much love. Enough to fill a week at home. Enough to carry us both forward.

A Letter from a Mom

A while back I received a letter from a reader.


Hello,

This is a strange thing to write in this comment box, but I have a daughter with Down syndrome, and she’s named after your daughter Joy, even though I’ve never met her or you. Let me explain.

My other daughter was in Joy’s class at Meadows when I was pregnant and we got the news that she would be born with Down syndrome.

It was an emotional time for me, and one day I noticed Joy (I didn’t know her name yet) in the pickup line and overheard the teacher say to your wife what a great day she’d had that day and has every day.

I was overcome with emotion hearing that; it was so overwhelming for me. And then later there was a picture of Joy and my daughter on the class app. I asked my daughter about her, and she told me her name was Joy, and I immediately started crying. I was not yet at the point where I felt joy, and I found it incredible that you guys named her Joy.

I resolved at that moment that my daughter’s middle name would be Joy and that I would manifest a feeling of Joy in my heart for my soon-to-be baby even though that’s not what I was feeling at that moment. I was so scared of the unknown.

Fast-forward to today, and our little L___ Joy (now 20 months) is the joy of everyone she meets and the little joy of our family!! It’s hard to think back to those early days after the diagnosis. I think about my fear and sadness with shame. But seeing your daughter Joy, without even meeting her, brought Joy to my heart and helped me through that time.

I ran into my daughter’s preschool teacher recently and through our conversation I ended up telling her the story and she shared your blog. I just spent the last hour reading it. It’s so lovely. I’m so moved by what I read that I thought I’d take a leap and send you this note. I loved reading the stories of Joy and I can’t wait for my little L___ Joy to experience all of the things I’m reading about.